A Song for the Autistic Soul

As the start of the school year quickly approaches, my mind is turning toward my little autistic friends at Harmony. Here’s a poem I wrote that gives you a glimpse into their world.

A SONG FOR THE AUTISTIC SOUL
©Tami Brumbaugh

The words struggle to pass your lips
But remain locked inside,
Prisoners behind a pearly white gate.
Thoughts pile up
Tripping over themselves
Forcefully jammed into cardboard boxes in your mind.
Shoved aside and collecting dust
Unopened
Unappreciated
When you just want to be Understood.

If only I could lure the words to my ears
Tempting them with a wide smile
Releasing them from their stronghold
So I could listen and respond.
Instead, silence.
My eyes are blank,
No spark of understanding.
Wanting to relate, but clueless.

I slide a PECs book in front of you
Laminated pictures Velcroed to worn pages
I know it isn’t enough
But it’s a start.
You shuffle through the pictures
Searching for what you crave.

Sometimes you find the picture
Apple
Cheese
Toy car
At last our minds graze each other
The tips of our thoughts connecting.
I honor your request.
You smile
Temporarily content
And my soul soars.

Other times, there is no adequate picture.
Nothing illustrates your desire.
You keep flipping through pages
Over and over and over.
Stuck in the motion.
The pounding in your brain intensifying
As the words hurl themselves on closed doors
Begging for relief
Aching for a response
You can’t reveal your thoughts and I can’t relate.
Shapeless screams erupt from deep within your turmoil.
How did they break through the barrier
When words cannot?
You slam the book to the floor
Blood boiling
And my soul sinks.

I wrap you in my arms, holding your heart to mine,
trying to impart peace
I rock you and whisper affirmations of safety
One day it soothes your frustration, relaxing muscles
The next, it aggravates you more, causing arms to flail.

I sing to you, hoping to distract.
You hum back, pitch perfect note for note.
I vary the tune
You match it with ease, rich tones unbound to words,
Incomplete syllables that speak volumes.
Will music be the key that sets you free?
Full words still snag on sharp white guards
But the pressure is siphoned.
Hope brims as our eyes meet.
For now we will savor our moment of connection
And sing a new song.

Lessons Learned in the Autism Room: Accept Differences

Before entering the Autism Room, I tried to prepare by immersing myself in books and articles on autism. I knew a few people on the autism spectrum, but their world was still a mystery to me. I filed common characteristics and relating strategies listed by experts into my mental toolbox, and approached the classroom door.

Screaming greeted me. I hesitated. It’s not like I expected silence, but my heart still began beating faster. I took a deep breath and stepped inside.

Three little boys sat in plastic chairs around a circular table munching on cereal bars. One boy pushed a match box car along a track and yelled when a second boy ventured too close to his car hoard. Another boy screamed when his tower of blocks toppled over. Yet another boy sat quietly in his chair while a teacher encouraged him to play. The lone girl was bouncing between toys every thirty seconds.

The teachers patiently explained the individualized programming for each child, and showed me how to collect daily data. After a brief circle time, we each guided our assigned student to his (or her) station.

My first student was a sweet boy with big blue eyes, spiked brown hair, and a beautiful smile. He was nonverbal and moved at his own (slow) pace. We worked on matching, motor imitation, and receptive identification. Whenever I sensed he was losing focus or becoming agitated, we would use PECS (Picture Exchange Communication System) and he would select a rewarding activity. He often chose a school supply magazine, as he was fascinated with looking at the fine print. He loved hugs and I loved giving them, so we were a good match.

Normally the teachers rotate students every Friday, but they were kind and let me stay with the same student for two weeks. There was a huge learning curve, but soon I felt like I was catching on.

That changed when I was assigned the next student. He was becoming verbal and had an entirely different program. He learned quickly and needed to be asked questions at a fast pace. I constantly had to remove items he managed to spin. His sensory breaks were more challenging because looking at a magazine or book usually did not interest him. He did not like hugs, and would cringe at physical contact as he was afraid of being shocked.

Every time we rotated students, I felt like I was starting a new job. Each child was so different from the others. Now I understood what Dr. Stephen Shore meant when he said, “If you’ve met one person with autism, you’ve met one person with autism.”

Working with extreme differences has taught me to be more accepting of differences in others and in myself. We all have attributes of interest and value and aren’t going to fit the same mold. We should encourage each other to reach our full potential and be a blessing to others—in whatever shape that may take.